Is It Worth It? Benefits in Research With Adults With Intellectual Disability.
نویسندگان
چکیده
Including adults with intellectual disability in research promotes direct benefits to participants and larger societal benefits. Stakeholders may have different views of what count as benefits and their importance. We compared views on benefits in research with adults with intellectual disability among adults with intellectual disability, family and friends, service providers, researchers, and institutional review board members. We found that adults with intellectual disability value direct and indirect research benefits, and want to participate in research that offers them. Other stakeholders generally see less value in direct benefits and predict more tempered interest in research participation as compared to adults with intellectual disability. To promote respectful research participation, research policy and practice should incorporate the views of adults with intellectual disability.
منابع مشابه
اثربخشی آموزش مهارتهای اجتماعی بر مشکلات رفتاری نوجوانان با کمتوانی ذهنی
Objective children and adolescents are faced with wide range of social challengeable situations every day. Intellectual Disability is a condition that determined by significant limitations both in intellectual functioning and in adaptive behavior. This condition occurs before the age of 18 years. The prevalence of intellectual disability is estimated to be at 1-3% of the total population. ...
متن کاملنقش سبک فرزندپروری مادران در پیشبینی مشکلات رفتاری کودکان پیشدبستانی با کمتوانیذهنی
The aim of present study was to predict behavior problems of preschool children with intellectual disability based on parenting style of their mothers. This descriptive study is correlational. The statistical population of this research includes the whole mothers of preschool children with intellectual disability in Shiraz city. The sample size was 58 mothers of preschool children with intellec...
متن کاملOBSERVATION IN INTERPRETIVE RESEARCH The challenges and benefits of using participant observation to understand the social interaction of adults with intellectual disability
متن کامل
"You can't be cold and scientific": community views on ethical issues in intellectual disability research.
Perceptions, attitudes, and ethical concerns related to conducting research with adults with intellectual disability hinder scientific innovation to promote health. Yet we lack an understanding of community views on effective research policy and practice. To address this knowledge void, we qualitatively studied the views of adults with intellectual disability and those who provide them support ...
متن کاملMutation in Aminoacyl Trna Synthetase 1 In Autosomal Recessive Intellectual Disability
Background: Intellectual disability (ID) is one of the most common neurodevelopment disorders that caused by both environment and genetic factors. Also genetic defects have involving for approximately 50% of ID etiology, it is demonstrated that genetics play significant role in ID development. The important risk factor in most country in ID is consanguinity marriage. Iran has high frequency of ...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
- Intellectual and developmental disabilities
دوره 54 6 شماره
صفحات -
تاریخ انتشار 2016